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Community Comes Together to Support Boy with Rare Joint Condition

A baby in Louisiana is born with a rare, debilitating condition that makes movement next to impossible. Now the community where he lives is coming together to try and help him.
Kenner -- (WDSU) He’s not even 1 year old, but a little boy born with a rare congenital joint condition has united total strangers in his quest to overcome his challenges.

Sunday, many turned to a higher power to show support.

A special Mass was held Sunday morning at St. Lawrence the Martyr Church in Jefferson Parish for a special boy.

Eight-month-old Noah Bracey was born with a severe case of arthrogryposis, a rare condition that in Greek means "curving of joints.”

Almost every joint in his body is affected. Little Noah, paralyzed, suffers from dislocated hips, severe curvature of the spine, hooked hands, a clubbed foot and more.

"He can only lay on his sides, obviously. He can't lay on his back, so to prevent bedsores and for his comfort, every hour or two I turn him – like literally, just turn him like a little pancake," said mother Rachel Bracey.

Dozens of parishioners have faith that a trip to Shriners Hospital for Children in Philadelphia will change Noah's life. They believe doctors there can help him. Baby Noah will undergo surgery on his feet and serial casting on his legs. Believers are praying for his recovery, his healing and a miracle.

"That's what we're praying for, because it's a lot as you can see. But I mean as far as mentally, he's there completely. He's so normal. It's just he's trapped in this little body that needs some fixing," said Bracey.

"But he's such a precious boy. I think that this is the opportunity that God has given us to serve him through him," said supporter Marla Donovan.

Members of the Hispanic Apostolate are raising money to send Noah and his mom on the one-month trip for his first surgery, in what could be a long road for a brave little boy with a heavy cross to bear.

"His heart is beating and is ready to be healed, and we're expecting miracle from God," said Carlina Doubleday.

"I appreciate everything. It's like complete strangers, people that I know, you know, everybody is coming together. It's just awesome, (and it’s) all for him," said Bracey.

Anyone who would like to donate to the Noah Bracey fund can do so at Fifth District Bank located at 4000 General DeGaulle Drive in Algiers. The zip code is 70114.

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