Monroe Mom Holds Fundraiser to Help Find A Cure for Rett Syndrome

MONROE, LA -- A Monroe mother is hoping to raise awareness for her daughter's debilitating syndrome.

Monroe resident Denay Hooks started selling "Girl Power 2 Cure" flowers at her church. It's a part of a national organization helping girls overcome Rett Syndrome, a type of autism.

The flowers are helping raise money for research on Rett Syndrome, which is a neurodevelopmental disorder affecting mainly girls.

Baby girls are born with normal functions but begin to lose acquired skills between the ages of one to three years old. 

It's caused by a single gene mutation that leads to underproduction of an important brain protein.

Children with the syndrome have problems with walking and talking. 

Hooks' 2-year old daughter, Hannah, is battling the syndrome. Hooks says the church blew past their goal of $1,000 in a few weeks, so now she's reaching out to the community to help find a cure.

"They are very close, it's right around the corner. I think that's what's so important for people to understand, they can be a part of making history and finding a cure for a devastating syndrome that could really affect these girl's lives, and help them live long, happy, healthy lives," said Hooks.

Hooks is creating a "Garden of Hope" at the church -- and hopes to make that garden grow with the donation cards.

If you would like to donate, head to First Presbyterian Church in Monroe on 1201 Stubbs Avenue in Monroe or call 318-323-9402.

You can also help by clicking here.

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